Alicia's Hidradenitis Suppurativa Journey in Sweden

Alicia Glasin cannot recall exactly when her HS symptoms first appeared. The chronic skin condition causes recurring boils in her groin area. She remembers the cruel nickname that spread through her school. Now she wants to raise awareness about this common but invisible disease. Hidradenitis suppurativa affects patients deeply despite rarely being visible to others. 'I know how it feels to be so damn lonely as a young girl,' she said in a statement. The condition affects approximately 1-4% of the population globally. Many patients suffer for years before receiving proper diagnosis. HS causes painful lesions in areas with sweat glands. These often rupture and create tunnels under the skin. The disease typically begins after puberty and can persist for decades. Sweden's healthcare system faces challenges in treating chronic skin conditions. Patients often need multidisciplinary care from dermatologists and surgeons. Chronic pain and drainage can make daily life difficult. Many sufferers avoid swimming or intimate relationships due to embarrassment. The emotional burden often outweighs physical symptoms. Why does society struggle to discuss visible health conditions openly? Public awareness campaigns could reduce stigma for millions worldwide.